The General Data Protection Regulation (GDPR) – May 25th 2018
The General Data Protection Regulation (GDPR) very significantly increases the obligations and responsibilities for organisations and businesses in how they collect, use and protect personal data. At the centre of the new law is the requirement for organisations and businesses to be fully transparent about how they are using and safeguarding personal data, and to be able to demonstrate accountability for their data processing activities.
To help break this down and make it easier for you to find out how we manage your data, please feel free to have a browse of our policies.
A brief overview of limb lengthening can be read here.
A Little Reality
[From the Boston Phoenix] The father of a girl with dwarfism peers into her future at the annual gathering of Little People of America. Written by Dan Kennedy. Read the article here ….
A Dream Lives in a Grand Design
[From the New York Times] By Timothy Egan, photos by Susan E. Seubert. A feature on Matt Roloff’s Western-theme, dwarf-proportion fantasy park near Portland, Oregon. Read the article here ….
Clinical summary of Achondroplasia
The Kathryn and Alan C. Greenberg Center for Skeletal Dysplasias is dedicated to the medical care and education of persons with skeletal dysplasias, and to the clinical and laboratory investigation into these conditions. The centre is attached to the Johns Hopkins Hospital Centre for Medical Genetics. A clinical summary of Achondroplasia can be read on their website. The main page for their website, which includes summaries of some other conditions and other related items can be found on the page.
By Melissa Hendricks, photos by Mike Ciesielski, Johns Hopkins Magazine, April 1999. A profile of Dr. Michael Ain, a pediatric orthopedic surgeon who has Achondroplasia.